Fierce Fibro Fighters Campaign Interview #1: Patti (a.k.a. FibroXpress)

1.) Name: Patti
2.) Nicknames (Online or IRL): FibroXpress
3.) Email Address: fibroxpress@hotmail.com
4.) Do you have a Twitter account? N
a.) Twitter name:
5.) Do you have a Facebook account? Y
a.) Facebook address: fibroxpress@facebook.cpm
6.) Do you have a Google + account? N
a.) Google + address:
7.) Do you have a blog? N
a.) Blog title: dont know how to do all that yet
b.) Web address:
c.) Do you want your blog listed as part of the Daily Mommy Survival Blog Roll? not sure what that is, but sure, why not

8.) What are your diagnoses? (The whole list if you please.)
fibro, diabetes, myofacial, hypertension, corpal tunnel, rhmatorathritis, chronic fatique, migrane headaches, sleep disorder, chronic sinuitus, PID, chronic yeast infection, gum disease, depression, anxiety disorder, obesity, skin cancer, bunyuns, stroke, light sensitivity, vertigo, irritable bowl syndrome, barensasophigus, diverticulisus, loss of hearing, hot spots, fainting, and much more
a.) When were you diagnosed? fibromyalgia diagnoses in december 1999, dr. valentine, astoria oregon (been to so many doctors cant list them all) other diagnoses came over a period of about 8 yrs after the diagnoses of fibro
(You can list Month/Year for each Dx or just the main ones – however, you prefer.)
9.) When were you diagnosed with Fibromyalgia?
a.) How long did it take for you to be diagnosed with Fibromyalgia? about a yr
b.) How old were you when your symptoms began? 38 yrs old
c.) How old were you when you were diagnosed with Fibromyalgia? 39 yrs old
d.) Were you ever “misdiagnosed” before you were diagnosed with Fibromyalgia? yes
e.) What were your “misdiagnoses”? blamed my pain on depression and/or unexplained
f.) How many doctors did you have to see before you were diagnosed with Fibromyalgia? as many as 10
g.) Which doctor eventually diagnosed you with Fibromyalgia? internal medicine doctor sent me to a rhrumatorathritis doctor apon my first visit with him after doing a bunch of tsts on me to rule out anything else it might be
10.) What are your primary symptoms of Fibromyalgia? physical pain everywhere, cant sleep, fatique
a.) How did your Fibromyalgia first present? band around my stomach area
b.) When did you first suspect you may have Fibromyalgia? i didnt suspect, didntknow what it was
c.) What things trigger your flares? bad rest, over doing it
d.) Has your Fibromyalgia caused you to become disabled? yes
e.) If so, have you filed for disability? yes
f.) How old are you now? 51 yrs old
g.) How long have you been living with Fibromyalgia? 13 yrs
11.) Do you have any family members with Fibromyalgia? Y
a.) If so, which ones? 2 sisters, no in contact with most family
(You don’t need to give names or anything – just like “Mom”, “Dad”, “Grandma” etc. Also, please feel free to pass along the information about this Fibro Project to your family members; I’m not shutting down the “Fibro-mites intake” for this Campaign/Project. The more the merrier. lol)
12.) Do you have any children with Fibromyalgia? N
a.) If so, are they sons or daughters?
b.) How old are they?
c.) How long have they had the signs and symptoms of Fibromyalgia?
d.) How old were they when they were diagnosed?
e.) Were they misdiagnosed with anything else first? Y N
13.) Have you found anything that helps with your Fibromyalgia? Y
a.) If so, what? good rest, sunshine, some meds short term
14.) Do you belong to any online support groups that have been especially helpful to you? N
a.) If so, what are they?
b.) What are the web addresses?
c.) Do you remember how you found them?
15.) How has Fibromyalgia affected you and your life the most? it took my life away, in aspect affected
a.) What do you miss the most about life “pre-Fibromyalgia”? being active, relationships
16.) And finally, if you could share anything with the world or say anything to the world about life and living with Fibromyalgia, what would it be? (This answer can be as long or as short as you want it to be.)

I suffered with fibromyalgia for 8 1/2 yrs, was homebound and pretty much beddridden, and reclusive for 5 yrs. of it, the other part of it put me in 3 1/2 yrs of homelessness, and life was a living hell. I wanted to die, and tried to take my life many times. Medications didnt work for me so I finally gave those up, along with giving up on doctors, and any hope I would ever get my life back, I was ready to meet my maker, made peace with life, and stayed home most of the time to myself. I went to over 100 doctors in 6 different states over an 8 1/2 yr time period to learn they all agreed I had Fibro with no known cause or cure, so I finally received a disability check where at least I could get off the streets and suffer pain in the privacy of my own home, which I did. Then, I found my real grandma in oregon in 2005 who asked me to come live with her,and see her family doctor who has the fibro care center of oregon, so I did. That was almost 5 yrs ago, and she showed me the way out of Fibro. I have been symptom free of Fibro for almost 5 yrs, and also I dont have any of the other illnesses either, plus I am on no meds, and I live pain free, as long as I stick with the program, which is a strict diet of natural foods, with periotic chiropractic adjustments, and I am dealing with emotional issues currently because stress is also a killer. Life after Fibro is incredable. I journaled my treatment for the last 5 yrs I have turned into a booklette to share with my fibro friends who are interested in seeing how it works. Hopefully soon I will have that ready to share with others. My hope is to help others get well too. I am here for anyone who wants to join me in the fight for Fibro.

Just for fun (You know, that demographic stuff. lol)
• What City, State do you live in? Oregon, Eugene

(PS This is Lizze now. I apologize for being a “day late and dollar short” on posting this. I promise I will try my best to keep up with them from now on.)